Jamie O’Hanlon is a North Attleboro native living there with her husband, Ryan and their five daughters. Their connection to heart disease is through their fourth daughter, Scarlett, who was born with a rare cardiac defect called Pulmonary Atresia with Intact Ventricular Septum. Essentially, she had no blood flow from the heart to the lungs at birth.
Fortunately, Scarlett’s defect was found prenatally and she received a life-saving operation the day she was born at Children’s Hospital Boston. In February of 2020, Scarlett endured a second operation on her heart which temporarily improved her quality of life. Scarlett is now 10 years old and was recently told her heart is once again failing and in need of a major repair. She is awaiting an open-heart surgery to repair her tricuspid valve and replace her pulmonary valve.
Since congenital heart disease has no cure, Scarlett will continue to need operations for the rest of her life in order to survive. Jamie and Ryan desperately wanted to turn this negative into something positive for their family and hence began fundraising for pediatric heart research almost immediately after Scarlett was born. Jamie decided to give that drive more focus through starting a non-profit. Her aim is to continue fundraising for pediatric heart research while also being able to give back to families in need that have been affected by heart and stroke both through the scholarship foundation and through the direct impact outreach.